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Showing posts from February, 2017

Seventeen: A Huntington's Disease Story

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     It was 1977, nearing one of the most fun decades I would ever know. My girlfriend was 17 and she came to my house with the latest edition of Seventeen so that she could look at it page by page and ask if I liked this dress or those shoes. I honestly don't know if other boyfriends did that, or if girlfriends did that with their boyfriends.  You see, as a teenager, she was the only girlfriend I had.      She however, being stunning to the eyes had many boyfriends and I knew about them. I encouraged her to have them because I was young. I was too young and I would be there with her as she got ready to go out with some boy who had a car. I was too young for that as well. I was never jealous. I just needed for her to not miss out on her teenage years, which for many are the best years.      So why would a young attractive girl want to be with a nerdy but nice boy who couldn't take her for a ride in his shiny car?  I know w...

Diamonds across the water: A Huntington's Disease Story

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                 I have watched her fade for eighteen years.  Once vibrant, talented, intelligent and glamorous, now only a shell of her former self.  It was like she no longer had HD;  that the demon that was this disease had now left.  It had taken everything from her and now tossed her aside to die.  It had used her up and taken most of what the essence of her used to be.  A part of her had hidden away from the demon far inside herself;  the part that loved and felt passion, and I could see it in her eyes that still had that famous twinkle.  Her eyes were her best feature, no one could deny it, although I have to admit it was the second thing I noticed about her.  The first was her exquisite behind.  It was something I often joked with her about and she knew it was no joke but she found it charming regardless.      I often sit with her now in the hospital just the two ...