Quality of Life...A Huntington's Disease Story

In general, quality of life ( QoL or QOL ) is the perceived quality of an individuals daily life, that is, an assessment of their well-being or lack thereof. This includes all emotional , social , and physical aspects of the individuals life. In health care , health-related quality of life (HRQoL) is an assessment of how the individuals well-being may be affected over time by a disease , disability , or disorder . The reason that I am writing about this is due to the fact that my wife is now approaching end of life. It is something she is well aware of and is a subject she expresses apprehension, anxiety and dread of. Huntington's Disease is something she is not a stranger to. She watched her mother waste away from this dreaded disease as well as her aunt and uncle and it has also been a part ...